Replies: 47
| visibility 1
|
110%er [5045]
TigerPulse: 100%
Posts: 4138
Joined: 6/28/17
|
Prayers needed
Oct 9, 2018, 3:03 PM
|
|
My niece is only a month old and is a perfect little ball of joy. Sleeps through the night, hardly cries and seemingly perfectly healthy. Sunday night she started having strange things happen including choking in her sleep and waking up constantly which is strange for her. So on the way to the doctor in the morning my sister noticed her having a seizure, both of my siblings and I have epilepsy so we have an idea of how to handle this but with a newborn it's a whole different thing emotionally. She was rushed to MUSC where the seizures would continue often. She has been happy through this whole process somehow but neurologists are puzzled as her EEG is not showing that she is having a seizure, they're hoping that she is having strange symptoms of parifluenza stating that sometimes it has "seizure like" effects on infants. We're hoping for the best and that this is all just a scary coincidence.
|
|
|
|
Hall of Famer [22127]
TigerPulse: 100%
Posts: 5026
Joined: 2/25/13
|
Re: Prayers needed
Oct 9, 2018, 3:06 PM
|
|
Prayers sent. ope everything turns out OK.
|
|
|
|
|
Orange Blooded [2638]
TigerPulse: 58%
Posts: 2707
Joined: 5/28/02
|
of course. done.
Oct 9, 2018, 3:07 PM
|
|
nm
|
|
|
|
|
Legend [18772]
TigerPulse: 100%
Posts: 14872
Joined: 12/11/04
|
Prayers for your niece and family !***
Oct 9, 2018, 3:08 PM
|
|
|
|
|
|
|
All-TigerNet [10121]
TigerPulse: 100%
Posts: 4858
Joined: 12/11/12
|
Re: Prayers needed
Oct 9, 2018, 3:09 PM
|
|
Praying for her health!
|
|
|
|
|
CU Guru [1207]
TigerPulse: 100%
Posts: 602
Joined: 6/29/08
|
Re: Prayers needed
Oct 9, 2018, 3:12 PM
|
|
Done, God please lay your healing hands on this child!
|
|
|
|
|
CU Medallion [68265]
TigerPulse: 100%
Posts: 115624
Joined: 11/30/98
|
Re: Prayers needed
Oct 9, 2018, 3:12 PM
|
|
done. all the best for her and the whole family.
|
|
|
|
|
Scout Team [178]
TigerPulse: 70%
Posts: 122
Joined: 12/8/04
|
Re: Prayers needed
Oct 9, 2018, 3:13 PM
|
|
In our thoughts and prayers
|
|
|
|
|
Commissioner [905]
TigerPulse: 100%
Posts: 296
Joined: 10/22/01
|
Re: Prayers needed
Oct 9, 2018, 3:24 PM
|
|
Prayers for the Sweet Baby Girl and her family!
|
|
|
|
|
CU Medallion [58632]
TigerPulse: 100%
Posts: 46415
Joined: 4/23/00
|
Prayers sent!***
Oct 9, 2018, 3:25 PM
|
|
|
|
|
|
|
Commissioner [992]
TigerPulse: 100%
Posts: 1528
Joined: 10/7/12
|
Re: Prayers sent!***
Oct 9, 2018, 3:28 PM
|
|
Prayers sent!
|
|
|
|
|
CU Guru [1261]
TigerPulse: 91%
Posts: 1192
Joined: 9/4/01
|
Re: Prayers needed
Oct 9, 2018, 3:39 PM
|
|
Prayers sent.
|
|
|
|
|
110%er [6024]
TigerPulse: 100%
Posts: 1669
Joined: 1/13/12
|
Re: Prayers needed
Oct 9, 2018, 3:45 PM
|
|
Prayers sent for this little baby girl and her family.
|
|
|
|
|
Orange Blooded [3327]
TigerPulse: 100%
Posts: 4058
Joined: 1/3/14
|
Re: Prayers needed
Oct 11, 2018, 9:48 AM
|
|
Lord, hold her in your hands and bless her!
|
|
|
|
|
Heisman Winner [136060]
TigerPulse: 100%
Posts: 26496
Joined: 9/18/12
|
Re: Prayers needed
Oct 9, 2018, 3:42 PM
|
|
Prayers for your niece and all of her family.
|
|
|
|
|
Commissioner [921]
TigerPulse: 100%
Posts: 554
Joined: 9/24/03
|
Re: Prayers needed
Oct 9, 2018, 3:44 PM
|
|
done!!
|
|
|
|
|
110%er [6223]
TigerPulse: 100%
Posts: 4311
Joined: 6/23/17
|
Re: Prayers needed
Oct 9, 2018, 3:44 PM
|
|
Prayers for your little niece, her parents and your family.
|
|
|
|
|
Heisman Winner [141033]
TigerPulse: 100%
Posts: 33943
Joined: 12/5/10
|
Done.***
Oct 9, 2018, 3:45 PM
|
|
|
|
|
|
|
Scout Team [178]
TigerPulse: 100%
Posts: 134
Joined: 2/15/13
|
Re: Prayers needed
Oct 9, 2018, 3:50 PM
|
|
Prayers sent for your niece and the family. Also praying for wisdom for the doctors in accurately diagnosing and treating her condition.
|
|
|
|
|
110%er [6737]
TigerPulse: 100%
Posts: 5009
Joined: 10/31/04
|
Done
Oct 9, 2018, 4:16 PM
|
|
nm
|
|
|
|
|
Orange Blooded [2111]
TigerPulse: 100%
Posts: 2835
Joined: 6/30/14
|
prayers to you and your family***
Oct 9, 2018, 4:17 PM
|
|
|
|
|
|
|
110%er [8386]
TigerPulse: 100%
Posts: 3959
Joined: 9/11/08
|
Re: Prayers needed
Oct 9, 2018, 4:28 PM
|
|
Done. God Bless!
|
|
|
|
|
110%er [9949]
TigerPulse: 100%
Posts: 16866
Joined: 4/30/01
|
Re: Prayers needed
Oct 9, 2018, 4:31 PM
|
|
In our thoughts and prayers.
|
|
|
|
|
Legend [19643]
TigerPulse: 100%
Posts: 16905
Joined: 9/5/02
|
Re: Prayers needed
Oct 9, 2018, 4:33 PM
|
|
Not trying to diagnose here, but our youngest had a few seizures as a infant and the docotrs could not pinpoint the cause. As he got older it turned out that he had complex motor stereopathy which causes flapping and rigidity when over stimulated. It is a fairly begnign condition which he has almost completely outgrown.
Hopefully, the same type of outcome will be the result with your Niece.
|
|
|
|
|
110%er [5045]
TigerPulse: 100%
Posts: 4138
Joined: 6/28/17
|
Re: Prayers needed
Oct 9, 2018, 6:41 PM
|
|
I appreciate the input greatly. Unfortunately epilepsy runs in my family so there's a good chance if these are seizures that will be the cause of it.
|
|
|
|
|
Letterman [270]
TigerPulse: 100%
Posts: 411
Joined: 8/20/09
|
Done***
Oct 9, 2018, 5:08 PM
|
|
|
|
|
|
|
All-TigerNet [11934]
TigerPulse: 100%
Posts: 16363
Joined: 11/30/98
|
Done ...***
Oct 9, 2018, 5:14 PM
|
|
|
|
|
|
|
Orange Blooded [4286]
TigerPulse: 100%
Posts: 5466
Joined: 2/20/18
|
Re: Prayers needed
Oct 9, 2018, 5:17 PM
|
|
Man, i throw a lot of trash around, mostly in fun... This is not fun...I turn of the meter and put my hand to the screen.. Just a thought to ponder. There is a lot of evidence coming out that Cannabis,that old scourge marijuana is proven to cut seizures from frequent to almost zero...Please ask more than one person who specializes in seizures to explain it to you. Best of luck...
|
|
|
|
|
110%er [5045]
TigerPulse: 100%
Posts: 4138
Joined: 6/28/17
|
Re: Prayers needed
Oct 9, 2018, 6:40 PM
|
|
I already asked about CBD oil and they said it's hit or miss. They said it'll completely solve most problems or have no effect so if the doctors do relate this to being in fact seizures I want to try this given that it's ok with her being so young because that's really what complicates all of this.
|
|
|
|
|
Orange Blooded [2064]
TigerPulse: 100%
Posts: 1008
Joined: 11/25/14
|
Re: Prayers needed
Oct 9, 2018, 7:00 PM
|
|
Prayer going up. God please this little one and her family.
|
|
|
|
|
Legend [16044]
TigerPulse: 100%
Posts: 7668
Joined: 12/4/06
|
Re: Prayers needed
Oct 9, 2018, 7:02 PM
|
|
Done! Best wishes
|
|
|
|
|
All-Conference [400]
TigerPulse: 100%
Posts: 174
Joined: 11/20/11
|
Re: Prayers needed
Oct 9, 2018, 7:10 PM
|
|
Praying for your niece and family.
|
|
|
|
|
CU Medallion [53195]
TigerPulse: 100%
Posts: 23117
Joined: 10/10/11
|
Done***
Oct 9, 2018, 7:12 PM
|
|
|
|
|
|
|
All-In [47966]
TigerPulse: 100%
Posts: 30534
Joined: 11/15/99
|
T & P's your way bro..
Oct 9, 2018, 7:13 PM
|
|
If she's at MUSC he's in good hands. Trust them.
|
|
|
|
|
Orange Blooded [3750]
TigerPulse: 100%
Posts: 1508
Joined: 10/4/11
|
Re: Prayers needed
Oct 9, 2018, 7:14 PM
|
|
Prayers sent.
|
|
|
|
|
MVP [506]
TigerPulse: 94%
Posts: 3552
Joined: 2/16/02
|
Done***
Oct 9, 2018, 7:25 PM
|
|
|
|
|
|
|
Orange Blooded [3043]
TigerPulse: 100%
Posts: 1256
Joined: 5/17/04
|
Done. God Bless!***
Oct 9, 2018, 9:47 PM
|
|
|
|
|
|
|
110%er [8867]
TigerPulse: 100%
Posts: 5339
Joined: 11/17/14
|
Re: Prayers needed
Oct 9, 2018, 10:25 PM
|
|
Prayers and see will get excellent care. As an adult I wouldn’t go to MUSC but they are the best, bar none, children’s hospital. Hope she comes home soon
|
|
|
|
|
All-In [26789]
TigerPulse: 100%
Posts: 3332
Joined: 7/28/12
|
Re: Prayers needed
Oct 9, 2018, 10:27 PM
|
|
Praying for this baby girl and her family.
|
|
|
|
|
Athletic Dir [855]
TigerPulse: 100%
Posts: 649
Joined: 1/20/05
|
Re: Prayers needed
Oct 10, 2018, 5:02 PM
|
|
Praying for the miracle of healing, and peace for the family, and knowledge and good decisions by the medical providers.
|
|
|
|
|
Orange Blooded [2721]
TigerPulse: 100%
Posts: 2059
Joined: 7/21/03
|
Re: Prayers needed
Oct 10, 2018, 5:08 PM
|
|
Praying for this sweet little one and the family
|
|
|
|
|
Orange Blooded [3681]
TigerPulse: 51%
Posts: 2396
Joined: 4/12/01
|
Re: Prayers needed
Oct 10, 2018, 5:19 PM
|
|
Prayers are with you
Hope everything works out
GOD BLESS
|
|
|
|
|
110%er [7010]
TigerPulse: 100%
Posts: 9418
Joined: 9/9/03
|
Prayers Sent!
Oct 10, 2018, 11:25 PM
|
|
Peace for the Family!
|
|
|
|
|
CU Guru [1577]
TigerPulse: 100%
Posts: 1331
Joined: 11/30/98
|
Re: Prayers needed
Oct 10, 2018, 11:33 PM
|
|
Prayers for her. May God lay His healing hand on that baby.
|
|
|
|
|
CU Guru [1898]
TigerPulse: 100%
Posts: 3418
Joined: 11/7/01
|
Prayer is outbound for this family.***
Oct 11, 2018, 12:01 AM
|
|
|
|
|
|
|
CU Guru [1948]
TigerPulse: 100%
Posts: 1128
Joined: 7/31/08
|
Re: Prayers needed
Oct 11, 2018, 7:57 AM
|
|
Praying for this sweet child and her family.
|
|
|
|
|
All-In [27237]
TigerPulse: 100%
Posts: 16052
Joined: 10/13/08
|
Re: Prayers needed
Oct 11, 2018, 9:30 AM
|
|
You got it!
|
|
|
|
|
Associate AD [839]
TigerPulse: 99%
Posts: 837
Joined: 10/20/14
|
Re: Prayers needed
Oct 11, 2018, 10:01 AM
|
|
Prayers being sent!! That is absolutely scary and i couldnt imagine what yall are going thru. Please keep us informed.
|
|
|
|
Replies: 47
| visibility 1
|
|
|